Fasciculations als reddit My symptoms are screaming ALS as well. I know this is tough to accept. These symptoms have persisted for about 48 days, and my legs always feel kind of weak and shaky. It says it very clearly in the abstract - “Fasciculation without weakness, muscle atrophy or increased tendon reflexes suggests a benign fasciculation syndrome” I 28 male started with multifocal fasciculations all over my body but mainly calves, thighs, eyelids, and left side of my lower lip. Also the hand is the symptomatic limb and the EMG has shown no abnormalities (the hand is composed of distal muscles). Patients with BOTH BFS and the ALS prodrome genearlly have motor neurone hyperexcitability ONLY. If you have suffered Minoxidil side effects or an adverse reaction, please join the subreddit and post your story. Because of the process underlying fasciculations in ALS, they are the harbinger of clinical failure (i. Try reddit muscle twitch or facebook bfs recovery group Also All EMGs are coming negative. Remember, there are a dozen plus other diseases that can mimic both BFS and ALS, things like Isaac’s disease. The likelihood of you developing the disease later is just as probable as your neighbor without fasciculations contracting it. Again, the ALS specialist did confirm that most patients who experience fasciculations and cramps prior to weakness experience them, focal to the same spot where weakness sets in. I also have fasciculations and spasms in the rest of my body, but to a lesser extent and frequency. but my doctor did In the first stage 1-ALS is a very rare disease 2- More than 99% of ALS patients feel weak in The Fasciculations have become more frequent and they're 99. 002% Therefore, the 0. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. Rx spoiler: The patient had ALS, but can someone actually have fasciculations (LMN sign) and spasticity (UMN sign) in the same place? comment sorted by Best Top New Controversial Q&A Add a Comment I feel fasciculations like small pops on my tongue for one week. Even considering ALS is super super stupid and 100% mental health problem. The tongue muscles sort of "roll" around in waves under the skin and it's very noticeable, distinct, and instantly recognizable by doctors. One will leave you crippled in a short time and is a disease of weakness. 9% in my calves and sometimes the occasional bump in triceps or shoulders. There are many conditions Get the Reddit app Scan this QR code to download the app now. I became depressed scrolling the internet for MND stories. Also als almost never starts with fasciculations, usually people visit the neuro with weakness and clumsiness etc. 5 years ago, and things haven't gotten any worse since then. Is my health anxiety about ALS Reddit iOS Reddit Android Reddit Premium About Reddit Advertise Blog Careers Press. But it’s not, typically it is just something called Benign Fasciculation Syndrome (BFS) and Yes. I went to the cardiologists she said I have a ton of missed beats “on the top and bottom” and that when I pressed the button on my holster monitor to alert for chest pain it did coincide with my heart rate shooting up to like 140. But my personal opinion is there could be multiple locations with fasciculations. That's it. I then noticed them in my left calf and again put it down to my back. I have this kind of problem for two years but the tongue fasciculations are new for me. I would call that benign fasciculations and not benign fasciculation syndrome. I asked him Get the Reddit app Scan this QR code to download the app now. Same here. There is one study which followed ALS fasciculations along the disease course. I can totally understand you , as everyday I am losing muscle so aggressively. Twitching (fasciculations) is sometimes a symptom of ongoing ALS. I’m 54 year old male. " so yes, really. Get app Get the Reddit app Log In Log in to Reddit. I did, and found the truth. Benign Fasciculations and the Fasciculations present with ALS are NOT the same thing, are not part of the same pathology, and are not caused by the same mechanism. Please do not remove this post mods, I am again not looking for a diagnosis, but some sanity I’ve been experiencing persistent left bicep fasciculations for the last 2 months. Lots of fasciculations and +1 fibs in both my calves, neuro said it was clean. That said, anecdotally, widespread, sporadic twitching does tend to point away from ALS, as the typical ALS presentation is for it to start in one Get the Reddit app Scan this QR code to download the app now. But it’s not, typically it is just something called Benign Fasciculation Syndrome (BFS) and while annoying In the workup for ALS the doc is looking for brisk reflexes or a better term hyperreflexia with clonus, clinical weakness that starts in one area and is progressive, pathological reflexes such as positive babibski, and then the EMG will correlate with the ALS pattern in multiple muscles/regions. This study of over 50 ALS patients confirmed that yes, a few did present with twitching before weakness, but a grand total of 0 presented with twitching first as the only symptom. They found that not only is BFS associated with the development of health Get the Reddit app Scan this QR code to download the app now. My MS is purely spinal, and we believe the lesion up at C1 causes the fasticulations, as they are full body. reported that fasciculations were widely distributed in ALS patients and locally distributed in non-ALS patients [9]. I came across this article while doing some research on BFS and I thought it would be really helpful to share with people like myself, who deal with health anxiety on top of twitching. It People living with ALS often experience muscle twitching or fasciculations, as the signal from the nerves to the muscles become more disrupted. ALS can start with fasciculations or cramps as the first noticed symptom. I remember the first one vividly, it was in my left thigh, soon after I was having constant fasciculations in my calves and the soles of my feet. Its really unnatural to lose that fast so much muscle. Is muscle twitching in als localized or all over. I ent to the hospital to find out I have normal EKGs, chest X-rays, and blood work I also experience tightness and pain in my legs when bending them backwards. 9 months ago I started having fasciculations. So second MRI the 20th and the neuro is to be rescheduled. Anyway, I started researching neuromotor diseases and it's been 1 month since I think I have ALS, because I have faciculations all over my body, weakness in my hands, tremendous tingling sensation and pain all over Get the Reddit app Scan this QR code to download the app now. But actually what really worries me are the tingling sensations that seem to happen more constantly since the fasciculations started. Weakness comes first and then atrophy and fasciculations. Or check it out in the app stores Can hyperreflexia (3+, without clonus) be normal considering that I also have fasciculations? I've read on google that if you are hyperreflexiv and if you also have twitches chanses are way higher of having *** because of UMN and LMN findings Hi ! I am 27 years old and for several months I have had quite heavy symptoms which have worried me a lot. Everything started gradually after my vaccination, without being infected at that point. I assume you've already been to a doctor? The one part about feel and type are kind of misconceptions from an earlier age. Or check it out in the app stores Fasciculations - leg twitching Article Anyone else have these fasiculations (constant 24/7 mini leg twitches) in both legs. Full body fasciculations alongside sensory symptoms point away from ALS. Tongue fasciculations can be benign. Anything can cause twitching from being really happy and excited to diabetes to being an avid runner. The majority of ALS fasciculations are continuous, but again, not always. Copper deficiency can cause peripheral neuropathy and in extreme cases neuromuscular disease. In ALS you end up with generalized twitching, but it usually starts in one area (along with weakness) and I'm having heavy fasciculations all over my body (arms, legs, shoulders) and I can't stop fixating on that horrible disease. Twitching is due to hyperexcitability in your nerves. It doesn't really matter too much, if you had ALS the EMG would detect those fasciculations (and other things, because they are not really looking for the fasciculations). I have EMG scheduled in a month. I did a genetic test for ALS and out of 42 genes 1 gene had a mutation but they called it a variant of uncertain significance. org. Twitching with ALS would start and stay in one area and then see weakness. You need to see your doctor. Do ALS fasciculations and cramping happen in many different spots of the body in initial stages . He did a clinical examination as well. I am physically and mentally a wreck since this started. I believe this could be an explanation for their low awareness. Almost the same thing happened to me. I'm I am posting the link to my post on r/askdocs but I am not looking for a diagnosis, I am only looking for someone to tell me that tongue fasciculations are only caused by ALS/ and that others here are experiencing this other than me. There are different types of fasciculations, but feel doesn't exactly play into it per se. After a while the patient could twitching in many places. 9K subscribers in the ALS community. "Very important about ALS: Fasciculations are NOT a sign that you have ALS, fasciculations in ALS start at a later stage - you would already have noticed not being able to move before that starts. You have what you perceive as weakness. After this neurological consult, my left leg pain disappeared, without any treatment, and my left hand numbness as well. From my understanding, fasiculations Benign fasciculation syndrome (BFS) is characterized by fasciculation (twitching) of voluntary muscles in the body. 100% deduction as an exact science no, but it does seem that ALS neurologists think that ALS fasciculations do not generalize as quickly as in BFS. To start: here I am talking about muscle fasciculations as in Benign Fasciculation Syndrome, NOT malignant fasciculations from ALS, parkinsons, or other serious diseases. I got slammed with search results of ALS ect. I’ve been twitching a lot all over my body recently, especially my toes and elbows and calves. But it’s not, typically it is just something called Benign Fasciculation Syndrome (BFS) and while annoying Joined Nov 13, 2013 Messages 58 Reason Learn about ALS Country US State ID City Boise A subreddit to share experiences of suspected and verified side effects and adverse reactions from the popular hairloss drug Minoxidil. This is very well documented. thigh fasciculations - should I get tested for als? On humira now scared to death. He said no sign of als or motor neuron disease. -Fasciculations in biceps and upper legs to the point it looked like larvae under my skin -Atrophy in muscle between left thumb and forefinger From the science community on Reddit: Men who engage in CTS causes many of the same symptoms as ALS, but notably will cause a difference in feeling where ALS doesn't. Anyway, I saw hundreds of ALS patients stories and most of them reported fasciculations as an early symptom. Hope it's just My Nonna had ALS and it's hard to know what symptoms came first because it was a long post-stroke diagnosis. Bulbar onset ALS is not subtle, usually manifests as speech difficulties. ALS is not a disease of twitching but a disease of weakness. Other “Symptoms”—Twitching If you have muscle twitching and the internet says that is a symptom of ALS, pay attention. Eyes Ok ok thank you very much, that relieves me a lot, I also think that it cannot be ALS, due to the time and the characteristics, in itself it is very unlikely to have ALS since I am 23 years old and even less likely would be that just My ALS will start with fasciculations and I still don't have any type of weakness 4 months later Now you might have learned that the twitches are called fasciculations and the web tells you it’s a symptom of something bad. But it’s not, typically it is just something called Benign Fasciculation Syndrome (BFS) and while annoying At this point I’m convinced I have als, I have 1 beat of clonus (please please let me know if that can be benign) and constant invisible fasciculations primarily in my calves, i’m so depressed because at my age als is so damn rare, and I haven’t been able to do anything with my life Get the Reddit app Scan this QR code to download the app now. Not everyone here only has fasciculations, those with additional muscular symptoms deserve to question their condition without resorting to comforting bullshit for the sake of a false sense of security. They found a lot of fasciculations on different muscles, and some "mild polyphasic “Benign fasciculation syndrome involves just muscle twitching and no other symptoms. Or check it out in the app stores I also did the whole ALS/MS/ any neurological disease spiral and to be honest, it's not worth it. Get the Reddit app Scan this QR code to download the app now. However, the above commenters are right! You would notice considerable balance issues or intense difficulty swallowing. I went through a 3 year saga with this crap. And spent 4 or so hours terrified looking around. In fact, having fasciculations doesn't correlate with Most ALS patients tested for twitching have already been diagnosed with ALS and have been deeply compromised by the time they are being “studied”. Just because you twitched before you feared ALS means 100% nothing, and since you did fear ALS it 100% means you have health anxiety. For this reason, a lot of the online material regarding ALS patients they have studied reflect they have body wide twitching. for some causes like electrolyte imbalance it can be a fairly unspecific early sign, but neurodegenerative diseases typically don't ALS was also something raised with me very early on in my diagnostic journey, turns out that wasn't the case and fasticulations can be associated with high spinal cord injury. , losing function in the bodypart), so they are followed fairly quickly by diagnosable failure. The main difference between BFS vs. It’s even more rare for there to be no other signs at the onset. I have been having tongue fasciculations for 3 months. Surfing reddit saved my life, one comment suggested check Lyme. So any symptom remission is a great sign. r/BFS has some nice threads on fasciculations/chronic twitching. 3x MRIs, 1 XRay, 1CT, they exhausted every other possibility and I started developing fasciculations and All these made up labels like "BFS" don't mean squat. Hey guys, I (23m) got diagnosed back in August last year, on Tecfidera since October. By the time you started twitching you’d have some serious other issues that would have driven you to see a doctor. The only hope that I have is that people with bulbar onset als usually (or at least so I have read) start with fasciculations in the bulbar region (face, jaw, and tongue) and then end up with fasciculations in the rest of the body as their disease progresses outward from the bulbar region, but by this point I’m thinking they’d have already Since I had fasciculations for several weeks, I decided on February 26 to go to the doctor and tell him about my fear that it was the beginning of ALS or MS or something serious, but he said that I only had anxiety and prescribed Anapsique Amitriptyline 25 mg, vitamin supplements and ordered blood tests, so I started the medication Since I had fasciculations for several weeks, I decided on February 26 to go to the doctor and tell him about my fear that it was the beginning of ALS or MS or something serious, but he said that I only had anxiety and prescribed Anapsique Amitriptyline 25 mg, vitamin supplements and ordered blood tests, so I started the medication Get the Reddit app Scan this QR code to download the app now. They flood this sub, and made those with real fasciculations issues feel they are alone. Reddit iOS Reddit Android Reddit Premium About Reddit Advertise Blog Careers one of the things I remember my husband's doctor saying when he was first diagnosed is that fasciculations are not correlated to progression. I had only seen fasciculations ever diagnosed in the context of MND/ALS and thought the worst. Topics include multiple sclerosis, seizures/epilepsy, stroke, peripheral neurology, anatomy of the brain and nerves, parkinson's disease, huntington's disease, syncope, medical treatments, ALS, carpal tunnel syndrome, vertigo, migraines, cluster headaches, and If the majority of people here transmit a positive message, it is because there are people here who have had fasciculations for years and have gone through the stage that others are going through, and they know that 99% of people on the Internet are scared with fasciculations and ALS end up in a diagnosis. Well, based on the history we have in this very sub, with madcybertist, his ALS fasciculations never stopped on the first muscle that he had atrofy. So any words of comfort from anyone who’s been experiencing the same and it turned out not to be a serious issue would be greatly appreciated!! Get the Reddit app Scan this QR code to download the app now. So 🤷♀️ Get the Reddit app Scan this QR code to download the app now. I’m 31, heart palps started 4 months ago, twitching three months ago. I have had 3 normal neurological But you’ve read it and your brain has gone into irrational mode and you’re interpreting this as some new evidence that suggest your fasciculations are ALS. Even though I have severe muscle wastage Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Trying not to panic. Symptoms that come and go point away from ALS. As you said 90% of the post here are mental bs, I 100% agree. I had a panic attack in 2020, and after many years, I self-diagnosed the cause of the fasciculations as anxiety I have the same thing for 1-2 years but it was mild 2 years before not occasional but nowadays its constant and mild limping too not visible at least but I didn't suffer from twiches , the twiches came 1 month ago this is happening on my right leg and I just can't get ALS out of my mind Get the Reddit app Scan this QR code to download the app now. So at the same time it is said Fasciculations alone are benign, yet at the same time it is Tons of other things ;) This likely is not ALS - you're 23. https://benignfasciculationsyndrome. Or check it out in the app stores bodywide fasciculations at rest and during movement, body jerks, very strong amplitude, sometimes only one movement, sometimes jerking/fasciculating for a minute and for more periods per day. Or check it out in the app stores So guys with my fasciculations i have hyperreflexia in both lower and upper extremities, and im so worried about that , my doctor say that i have hyperreflexia and stoped talking, which makes me so worried Studies show that Get the Reddit app Scan this QR code to download the app now. ALS can cause muscle How Does ALS Muscle Twitching Differ From BFS Muscle Twitching? Benign Fasciculation Syndrome vs ALS. I googled it, and boy did I regret doing that. ALS does not start with twitching, this is a mid- to late-stage symptom. The fasciculations in BFS usually occur at a single site in a single muscle at a time. 002% represents the approximate likelihood that a person experiencing fasciculations might have ALS, according to the provided percentages. What matters about them in how they appear on an emg. If you have any advice please send me because i dont feel very well. Your EMG showed fasciculations, which it obviously will, since you are twitching! Sounds like it did not show any denervation or additional findings. He said that if there was a chance that fasciculations were from ALS, he could provoke them very easily. 001% of people, primarily older And are als tongue fasciculations always happening regardless of what the tongue is doing, or can they sometimes just be triggered by voluntary tongue movement? Other things to consider: I have had body-wide fasciculations for about 3 months with them mostly being in my torso (chest, abdomen, sides, and back), shoulders, and neck. ALS is a truly awful. Als also shouldn’t really have twitching off and on, it is consistently worse and worse over time (ofcourse day to day variations can happen). They found 0 bulbar twitching in non-ALS groups, but you can find plenty of discussion in this subreddit of non-ALS twitchers experiencing bulbar symptoms and being fine. ” Ussualy they can't be felt or seen. Started off with leg calf twitching then spread to all body twitching then I started with pots like symptoms of excessive heart rate whilst standing then anxiety kicked in and thiught I had Als or some nasty like that. From your profile, it sounds like you are a woman, which lowers your odds even further since ALS is more common in men. They are fasciculations of muscle fibers at the surface of the muscles. Reply 33 votes, 17 comments. 13 months ago, I started experiencing localized twitching in my left bicep, and just days after, started experiencing body wide “Although fasciculations are not classified as a motor disorder, they are conceptually abnormal movements. 4. Weakness often comes first, but not always. When I read the tongue twitches were “never benign” a quote from an ALS specialist that was TOTALLY OUT OF CONTEXT Welcome to r/neurology home of science-based neurology for physicians, neuroscientists, and fans of neurology. I had a clear Emg result. From the research I have done only ALS can do that so fast. Doctor said only simple fasciculations. Nothing like yours. i’ve had the fasciculations for almost a year now, im a constant twitcher all over but mainly in my legs. every time every day, non stop. “Tsuji et al. Knowing if you have myokymia is important because myokymia is seen in certain diseases (MS or GBS) and not others (I dont think its seen in ALS for example). Idk why this al Now you might have learned that the twitches are called fasciculations and the web tells you it’s a symptom of something bad. When I did not feel any weakness in the intervening time, I overcame my fears and lived happily with fasciculations. Or check it out in the app stores The symptoms of benign fasciculations syndrome and restless legs syndrome seem to overlap to some degree. Join and support us with relevant information about BFS and axianty Some people with ALS wonder if the presence of muscle twitching means they have a bad or fast-moving version of the disease. Good afternoon everyone and thank you so much to anyone who reads and offers insights to my questions. In other words, there are no rules, and there is no way to diagnose or rule out ALS based on twitching, neither the frequency, duration, or the location. I went to see a neurologist last week and he was not too concerned as there were no obvious clinical weakness or muscle atrophy however I However, I did have a long-lasting mystery case of fasciculations and was evaluated for ALS. But the EMG in ALS will show many neurogenic changes not just fasciculations. ALS muscle twitching is that the muscle contractions associated with It is well documented that fasciculations diminish or disappear as ALS progresses. Your muscles might be tired and fatigued from the twitching. Or check it out in the app stores ALS is very rare and you don’t have any weakness. Or check it out in the app stores I've see quite a few fasciculations videos and your's looks nothing like it. Here is a video of what I am talking about: Now you might have learned that the twitches are called fasciculations and the web tells you it’s a symptom of something bad. So listen to me carefully, is it “possible” yes. In ALS, the fasciculations are more likely to occur in multiple muscles at the There are more conditions that could cause fasciculations, I started after a strong viral infection, I remember that I had a lot of anxiety after being bitten by a cat because 3 days later I started with the strong viral infection and I was convinced that I had rabies, it was days very hard, I thought I would die, I had a lot of anxiety and disconnection from reality, very bad inflammation in Get the Reddit app Scan this QR code to download the app now Now you might have learned that the twitches are called fasciculations and the web tells you it’s a symptom of something bad. ” “No fasciculation was detected in suprahyoid muscles for non-ALS patients in this study. I was terrified for the first year. Any neuromuscular doctor can confirm this. I understand this is a ALS symptom, but the neurologist says no. From the science community on Reddit: Men who engage in recreational activities such as So YEA you can have bad fasciculations and be in the BFS community. 2% of patients had This comprehensive overview explores the differences between ALS-related twitching and normal muscle twitching, covering definitions, causes, characteristics, and diagnostic processes. Edit: grammar mistake Reply reply Just the same ALS can have widespread twitches that are not caused by LMN death, but cortical hyperexcitability that occurs early in ALS and can indeed cause widespread fasciculations. Typically begun in one place and spread to adjacent area. Where do twitches occur? Twitches can occur in any voluntary muscle, excluding internal organs, typically affecting arms, legs, abdomen, tongue, cheeks, eyebrows, throat, fingers, back, scalp, and ears. My symptoms have been fairly mild up to now, but looking back over the past couple of years I notice I've had fasciculations (small intermittent vibration sensations in specific points of a muscle, lasting 1-2 seconds) in my quads/calfs fairly frequently and occasionally in my biceps too for . Because no de-inervation is happening. No, you do not have ALS. Fasciculations without weakness doesn’t mean anything. It is seldom, if ever, a first symptom of ALS (especially if it is all over your body). It looks like the big difference is that bfs muscle twiches are widespread while als starts in one region Having said that you are way too young and was cleared by a neuro and an emg to boot. If your PCP says you're "still strong" then you have no clinical weakness. r/BFS A chip A close button. I’ve noticed fasciculations in my calf , thighs, arms,hands and feet for about 5 months now. Hi. So your muscles are working overtime twitching. Progressive weakness with significant muscle wasting (it started in one hand) cramp-like pain and fasciculations all over (tongue also and slight slurred speech) the body. For one thing I don't have weakness in any part of my body. The ALS fasciculations I've seen are all high intensity many sites fasciculating at the same time in tandem, like worms under the skin. I appreciate all response :) I have been a lurker to ALS and BFS forums since I started twitching but waited until I saw a neurologist to post. ” Widespread twitching mostly points towards bfs however there’s no such thing as good twitching or bad . I just couldn’t keep my mind from racing about ALS and each time I’d get distracted there was a twitch to being it Let’s consider your age assuming you are young, it’s very rare. Or check it out in the app stores Home; Popular; TOPICS Now you might have learned that the twitches are called fasciculations and the web tells you it’s a symptom of something bad. Since then my muscles on my hand are twitching 24/7 for 4 weeks. Or check it out in the app stores TOPICS I took a look on als forums, have seen threads and posts about people who started twitching after covid or vaccine, who later got ALS DX. Anxiety is probably the main cause though. Nothing outside normal should be termed "benign" simply because its not immediately critical. Fasciculations that can be seen, most often can be felt too. ALS involves clinical weakness which is much scarier than perceived weakness. But it’s not, typically it is just something called Benign Fasciculation Syndrome (BFS) and while annoying Half true, I don't know about the number of als or bfs diagnosis even if bfs is really rare too, saying that als is more common than bfs without real data about bfs is non sense. It has been linked with ALS, as ALS patients have lower Copper, and the more severe ALS have even lower Copper levels. Sometimes it decreases and sometimes it increases. 10% of ALS patients had mutations in this gene and it generally is an indicator of disrupted calcium signaling inside cells along with phospholipids or something. This has been going Now you might have learned that the twitches are called fasciculations and the web tells you it’s a symptom of something bad. from BFS and the alleged ALS never If you have fasciculations and no other symptoms, you don't have ALS. Sensory stuff started with random individual pinprick sensations at random intervals all over the place but then escalated from there. Or check it out in the app stores I have taken 6 300mg gabapentin tabs for about 4-5 years for SFN pain and fasciculations. Fasciculations in ALS are caused by the brain/spine losing connection with the muscles, which is a progressive process. true. The reason this is not super common is because although cortical hyperexcitability occurs in all ALS patients very early on, it does not always cause widespread I have fasciculations on the legs (sometimes on the torso or shoulder) some shaky fingers during the day (less in the evening). But it’s not, typically it is just something called Benign Fasciculation Syndrome (BFS) and while annoying Regardless of origin, fasciculations often present as the initial abnormality in ALS, an early harbinger of dysfunction and aberrant firing of motor neurons. The study examined some case studies and conducted a systematic review of literature related to BFS and anxiety. Almost no muscle group has not twitched at some point. What I’m worried about Also, for those very few cases where an ALS patient reported fasciculations before weakness. The other option doesnt even make sense. I am so sad and anxious about it. That being said, anytime you have fasciculations, they will I went to get an emg and ncs. Or check it out in the app stores Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. ENT said right vocal cord muscle was weak and barely moving. 01% (probability of having ALS) * 80% (probability of people with ALS experiencing fasciculations) * 25% (probability of ALS beginning with fasciculations) = 0. Until I found the ALS forums that showed me that it was very unlikely that ALS was my case. I googled it and it seemed very certain to me. It’s extremely rare to twitch for a long time before weakness appears in ALS. To say that someone who There is a condition known as Benign Fasciculation Syndrome (link below). Over the 20-month period since the onset of your eye twitching, it's reasonable to expect that you would have experienced some additional symptom progression beyond just tongue twitching if ALS were present. But it’s not, typically it is just something called Benign Fasciculation Syndrome (BFS) and while annoying, But the person who did my emg was a very highly trained neurologist (not to be confused with my primary doc or the neurologist I see next week lol idk why it happened that way) and he said you def don’t have Als idk why you’re twitching but you don’t have Als. Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Shakiness isn’t an ALS symptom. You already have a probable diagnosis (BFS), and ALS is not likely in your case. These are caused by the tips of Fasciculations occur when motor neurons — the cells in your nervous system that control muscle movement — become excited and release electrical impulses spontaneously. Have had 2 clean EMGs of right leg and arm, as well as left leg. That’s fantastic news. What I was told was that by the time ALS twitching happens, the muscles are already dying - noticeable weakness happens before twitching. He only checked my lower limbs, I have twitches in random around my body. Obviously as the average individual does. I also get frustrated when I see someone posting about twitching a few times a day. My ALS doctor said the best option was a muscle relaxer taken only at night. ALS tongue fasciculations look like worms. Important is that there is also progression. Your theory number 1 would be crazy and not even worth considering, you may as well consider aliens giving you ALS through a space laser. the twitches don’t bother me at all anymore, they used to bother me so much to the point where it’s all i could focus on and i would feel every little twitch but now that they Yes there is a difference. So if you worst area is clean, then that’s a very good sign and it’s not wrong to examine additional areas, but may not be clinically necessary. The ALS clinic at Duke acknowledge they get contacted constantly by people all over the world, worried about fasciculations and the “absolute vast majority” will not have ALS. Now when I focussed on that I swear I couldn't swallow for a few days - but it's somatic symptom disorder. Also, ALS rarely shows in both upper and lower limbs simultaneously. I feel lonely with this condition. I wouldn’t get too worried. The muscle weakness I'm feeling is constant and it's in pretty much all of my limbs but worse in the legs, doesn't matter if I'm laying down, sitting or walking, I get out of breath pretty quickly and dizzy when Some of you may not know that cronic Lyme causes muscle fasciculations, muscle weakness, muscle wasting/atrophy, nerve pain, joint pain, pins and meddles, muscle spasms, muscle dents and all in that category. Hi everyone, I’m 19 and female. The fact you can swallow means your are fine, if the saliva was rolling out your mouth and you were slurring your words then I would be concerned. This was almost 1. So, when they go away, it isn't necessarily a good thing. Expand user menu Open more common to be localized, in the begging, but is rarely a first symptom. Remember, ALS is not about feeling, it's about Idk anything about the etiology but I imagine that this selection influences which muscle twitches were detectable. i get the jerks during the day as well. Als type twitches are 20x faster than regular fasciculations. Or check it out in the app stores Landed on MS and ALS. Or check it out in the app stores Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. I had nearly every ALS symptom like Debatable. e. ALS can start with twitching as the only symptom. Fasciculations-Fear ALS . I understand where you’re coming from because I too have awful health anxiety and this stuff manifested as diffuse muscle twitching, to include tongue twitching. Noticed recently that I also have bilateral tongue fasiculations (not just quivering or shaking - they are objectively fasciculations). Despite they are not rare, only a few studies investigate the association between fasciculations and motor disorders. Literally. It really helps a lot but I’m anxious about PN nonetheless. Or check it out in the app stores Now you might have learned that the twitches are called fasciculations and the web tells you it’s a symptom of something bad. ALS-related weakness is relentless and invariably progressive, whereas BFS-related weakness improves over time. You can't have denervation of the type seen in ALS for 2 or 3 years without weakness developing - not possible! So people with the prodrome tend to have have both normal clinicals and normal EMGs. I had tongue twitching plus other kinds, visible but not constant. Not saying ALS is caused by Copper deficiency, but there are hypothesis that ALS might be jump started by low Copper levels. Some days I can speak clearly, other days my tongue seems to stumble. mostly when i’m falling asleep tho. 8 months later I noticed my left elbow (probably a muscle called anconeus) twitching and within days they exploded. In other words 37. Or check it out in the app stores Now you might have learned that the twitches are called fasciculations and the web tells you it’s a symptom of something bad. My heart palpitations started about a month before the twitching. I had a 3 week long eye twitch, googled and then magically I had all over twitches. Now you might have learned that the twitches are called fasciculations and the web tells you it’s a symptom of something bad. And you wouldn’t spend your time on Reddit, you’d have bigger fish to fry. Physician, but not neurologist. In ALS fasciculations are persistent. . Highly doubtful at 17. Tingling, itchiness, crawling sensations, burning, pins and needles. Mostly arms and legs, though no hands yet weirdly. Fasciculations are anywhere & everywhere. They are very very consistent. 6,3k people. Trying to understand the disease from a few on Reddit is dangerous, because stuff can be Get the Reddit app Scan this QR code to download the app now. I know so much about it because I spent countless hours researching ALS. ALS waited for you to google cramps before giving them to you? I also have extremely long standing cramps and fasciculations that have been isolated to my right calf after an injury but cramps elsewhere are new. The best example that fasciculations alone don't mean anything is seen in this subreddit. Every study mentions the same thing. Long story short: Have had body wide, constant fasciculations for 4 months. Do not even think about taking any drastic measures as you said you are thinking about. Over time I also started getting random fasciculations throughout my body, my hands, abdominal muscles, triceps, eyes, you name it. I have been twitching well over a year now and actually compete in strongman contests now. In the absence of other neurogenic findings,fasciculations are benign. I feel like BFS is just like RLS but with fasciculations and with less of a need to move the legs. I am very worried about Parkinsons disease and ALS Yep! And they also don't just start getting full body fasciculations coincidentally at the same time their tongue starts getting twitch, and anxiety isn't a trigger to worsen those symptoms. Therefore, fasciculation in this area was highly specific for distinguishing ALS from non-ALS diseases. 0. Fasciculations started early in my arms and hands. ,now i haven’t been quite inactive for the last 2 years (basically didn’t exercise or even walk 2km in a week) and have spent most hours lying It is an abnormal finding but it does not bring you closer to ALS, if you had fasciculations there should be more findings (and you also say that it takes time). Multiple ALS journals describe the weakness onset of the initial muscle occurring over days to weeks and then spreading to other muscles a few weeks after that. Additionally, you think you have bulbar onset ALS, but ALS usually starts in the extremities, making your odds even lower. In ALS there are no better days, it is a deteriorating progressive disease, so if today your fasciculations were better than yesterday, you're surely clear. Reply reply Solid_Sleep_7724 Neurologists can tell the difference between myokymia and regular benign fasciculations through an EMG, since myokymia fascics follow certain patterns. Jerome 22 M I am afraid that I have a muscle disease, I sometimes have muscle twitching (usually at rest) (painless) at the back of my thighs and to the right of my knee and in the knee itself or slightly above and at the hollow of the knee. Not Tongue fasciculations in bulbar ALS look like worms crawling around inside the tongue. I’m gonna go on a limb and say they’re anxiety based/psychosomatic. My fasciculations started 4 months ago in January, I think they started after a strong viral infection that I had that even made my ears inflame, my current fasciculations are all over my body, lips, neck, feet, fingers, hands, belly, back , and they last only a few seconds and disappear. In fact, my fasciculations seem to have toned down a bit, now that I don't think about them too much. If you have numbness, tingling, or pain as your primary symptoms, you're fine. My story is a bit longer. You have "perceived" weakness, no failure of limbs. He said that there is no need for EMG, and that he can assure me that I'm healthy. Symptoms sound anxiety induced. My tongue also hurts a little, which is hampering my speech. It all started with me loosing my voice back in August. CTS affects 5-10% of people, with a primary onset in young or middle adulthood (many of us on Reddit); ALS affects about 0. The only thing they have in common is that some researcher somewhere long ago labeled all muscle twitches with the same word- Fasciculations. But it’s not, typically it is just something called Benign Fasciculation Syndrome (BFS) and while annoying, it’s totally harmless. I’m starting to think I might be developing ALS. Amyotrophic lateral sclerosis (ALS) is a The paper evaluated the presence of fasciculations prior to diagnosis or AT THE TIME of diagnosis, as opposed to AFTER diagnosis. Neurologist said I was clear of ALS, despite similar symptoms Labs were all clear, & only EMG showed any abnormalities in conductivity. menu Open navigation Go to Reddit Home. roembal nkvh lypqcv oylisjt ntf oqeog shaid knjw tjsqi yszd